Thursday, June 8, 2017

Campfire

A friend of mine has encouraged me to get back into writing so I'm going to give it another go. Life has been so difficult the past 7 months! Evelyn. That's all I need to say!
Today was a good day! She actually ate several times throughout the day while awake, with minimal convincing! I'm still in shock. It's been almost 4 weeks of feeding refusal again and I think today was finally a turning point. She has been on her new medication (Lansoprazole) for 9 days now. I think it's starting to work! I was terrified to put her on it. TERRIFIED! But I have exhausted all alternative treatments and nothing else is working. We have tried: chiropractic care, muscle testing, Total Elimination Diets, homeopathics, probiotics, prebiotics, Mylanta, Zantac, I think we've tried it all. And my baby was still not eating unless she was asleep. Finally I broke down and went to the doctor and asked for a PPI. It sat in my fridge for a week before I couldn't handle life the way it was for one more minute. I had to give the scary PPI a try. We are on day 9 and I don't want to jinx us, but I think it's kicking in. She is eating!

Life for everyone has been on hold now for 4 weeks because of this feeding aversion. My life has been completely consumed by trying to feed her, pumping when she won't eat, and trying to bottle or dropper feed her. When I'm not trying to feed her I'm reading about what to do to help her. My other three kids, I feel so bad for them. They've been lost in the shuffle for too long. I just couldn't handle anymore and so they've been watching movie after movie for weeks now. Finally today I was able to spend quality time with them. Oh how I've missed them. I took them to the playground and played with them for well over an hour. They are so sweet! I'm so excited to have our life back. I hope and pray that this continues.

There is one lesson I'm really learning through this; take advantage of every day you have with your family. Don't assume you will have one more day to do that fun thing, or to make that memory with them. DO IT TODAY! I was not intentional about building memories and having fun with my children. Until the time came that I couldn't. I mean I absolutely could not spend time with them for 4 weeks in a row. I have missed my 3 other kids so much these past 4 weeks. I am determined to make it a point every day to have fun in some way with my kids. Laugh with them, sit and talk with them, play a game of Operation or Candy Land, take a walk, do whatever, do something. When something is taken away from you it really makes you realize how blessed you were and how easy it is to take things for granted.

Tonight we had a camp fire in the back yard. We have had s'more stuff sitting in the cupboard for over a week now just waiting for that perfect night to use them. The kids keep begging for a camp fire. We keep saying not tonight; it's too cold, it's too late, we're too tired, we have to get up early, it wasn't a good day, etc. Well, tonight we had a campfire! I don't care anymore if it's not the perfect scenario. We just need to do it! The kids had a blast. We spent an evening of quiet time just being with each other. Then they were off to bed by 9 pm. I put Evie down for bed and now it's my turn for some 'me time'. 



1 comment:

  1. I love it! You are an inspiration to me. Your testimony to spend that special time, without waiting for the perfect moment, is priceless advice. Thanks for sharing, and we're praying for Evie's health, you, and your family.

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